I had my official diagnosis today SCA6. Not quite sure how I feel now I. Have one:(
I know how you feel, however having something more of a definate diagnosis,
I felt better when I had a diagnosis at least then you can be more positive and try and work with the doctors or anybody who is looking after your condition, and then you find people like us who understand what your feeling, and sometimes just knowing someone else with the condition or one similar you don.t feel so alone.
The diagnosis will probably not change your life in the least bit. Unknown SCA or SCA6 has almost no impact on your life.
Well Beverly, you now have a number. I do not. But all of us here have ataxia and I'm sure we all feel the same. Some more positive then others. (speaking of me) But we have this wonderful place to vent. now you know exactly what to look for. And your not alone.
i didn't want to think or talk about my diagnosis at first. my dr said; "wish i could help you, see ya' bye! no help, no nuthin'. i certainly hope this isn't the case with you. i trust God leads you to the help you need. i am continuing to look for a dr that can give me at least a small amount of help.
Ive Fallen
I am so sorry the the doctor made you feel like that. True the doctors can not do much. But sincere isn't to hard. I know I have ataxia with no number. keep posting things. This sight can make you feel better about yourself. I just went to the doctor. And found out these wonderful people know more then the doctors! your not alone Ive Fallen! Keep your head up!
Hi,
After a diagnosis no one feels fine. As many say you are not alone for we are all here. Time is the best healer and once we accept our situation which is not easy things appear more light and manageable. Stay strong for hope sustains life. Good luck always.
This group has helped me tremendously. You will learn a lot here.
Have a question for you. Did you go through genetic testing to get your diagnosis?
Hi Beverly,
Congrads! I truly think you have a choice in how to look at this. It's not a feeling just a decision I think. I look at your new diagnosis as a new chapter of knowledge for you! Your actually lucky I think. Now you know which direction you can take to help your ataxia. There are many clinical trials now that you can get into because you have a diagnosis! Wahoo, new chapter! :0).
I see it as your getting more opportunities. Wahoooo! Keep us posted on where this leads you!!!! :0)
Hi Beverley!
I was only tested for SCA6. The Neurologist said if you have to have one, hope it's that.
Unfortunately it was negative. Don't feel bad about it, you're still you, I sense that deep
down you're a strong person anyway, you'll be fine.
I still haven't followed up on DLA, dithering as usual, but I appreciate the advice!
xBeryl
Ive Fallen said:
i didn't want to think or talk about my diagnosis at first. my dr said; "wish i could help you, see ya' bye! no help, no nuthin'. i certainly hope this isn't the case with you. i trust God leads you to the help you need. i am continuing to look for a dr that can give me at least a small amount of help.
Ive Fallen,
Dr George Wilmot is in Atlanta at Emory, is that too far for you? I think he is the only Ataxia specialist in Georgia.
I saw him and had a good experience with him. He really listened and answered all my questions. The only problem was the length of time to get an appointment. I had to wait 4 months…but it was worth it.
Good luck to you.
Ive Fallen,
Dr George Wilmot is in Atlanta at Emory University Hospita.I saw on your profile that you are living in Georgia and thought you might be interested. He is the only Ataxia specialist in our state I think. Is he too far for you?
Hope you find someone who can give you some kind of answer soon.
I saw him and he is very thorough, very nice and answers all your question. I had to wait four months to get an appointment to see him, but it was worth it. For me, at least, it was a good experience.
Take care and hang in there ( literally 
Sorry about the double post. I did not think the first one had gone through…
I think it's better to know than not, as there's many diseases that can cause ataxia symptoms, some much more serious and debilitating. I was diagnosed with ataxia 10 years ago, and although it's frustrating and challenging, it's not the end of the world (for me). Just knowing what I'm dealing with has been comforting, as I can do different things to help myself, like physical therapy, exercising for strength and balance and trying to eat healthy. There are many different types and degrees of ataxia, some hereditary, some not (mine, at least for what is known thus far), as well as different causes. Some progress more rapidly than others, and some don't progress. None of us know what the future holds, ataxia or not. Hopefully you have a good doctor that can advise you. Keeping a positive attitude has been helpful to me also. This site is great for support and advice! My best to you...,;o)