Does anyone have a good neurologist (that is interested and knowledgable about hereditary ataxia) in NC or surrounding states? Thank you.
https://www.ataxia.org/links/movement-disorder-clinics.aspx
You can see state wise lisings
Why do you need a neurologist? I have CSA Type 2 hereditary and I just go to my family doctor. He does any follow up and will refer me to other people if he can''t help me. He can ask me to walk a line, touch my nose, etc. just as well as a neurologist. If anything I would try physical therapy (type that deals with neuro conditions, not orthopedic) and maybe occupational and speech therapy depending on what symptoms you have. I know the PT and OT has changed my life. I think the neurologists are a waste of time and money. What can a neurologist do, and even one that specializes in ataxia, that your family doctor can't? You're farther ahead if you do your own research and then talk to your doctor.
I just saw Dr. Cooney at Duke University Movement Disorders Center. I really liked him as I was not having much help at Raleigh Neurology
Sandy Poole Dyson said:
I just saw Dr. Cooney at Duke University Movement Disorders Center. I really liked him as I was not having much help at Raleigh Neurology
beachbaby12 said: I live in New York State and had to go to Columbia Presbyterian to Dr. Kuo! It happened overnight in 2013!
Sandy Poole Dyson said:I just saw Dr. Cooney at Duke University Movement Disorders Center. I really liked him as I was not having much help at Raleigh Neurology
My brother who lives in Jacksonville, NC was recently seen by Dr. Patrick Hickey at Duke. As I understand, the doc is a movement disorders specialist. We have an unknown hereditary ataxia. It was quite a drive to the appointment, but he was satisfied and will go back in a few months for a follow-up appointment.