Any recs for doctor in NJ for spinocerebellar ataxia? We live in Northern NJ but will even go to NYC for someone highly recommended
Hi Jan welcome. You might find one of these links helpful
Thank you Beryl! I’ve seen a few of your posts on here and they have been very helpful!
Hi Jan, I am in the same boat as your mom! I’ve seen at least a dozen doctors and they all say the same thing, get physical therapy (a lot of good that does). The best doctors would properly be the ones in NYC. His name I saw is Joerg Patrick Ztuben. He at least has the patient etiquette and runs all the tests necessary . He is located at Weill Cornell Imaging at 130 York Ave. - 212.746.6000. I have 8 more doctors plus one in Pennsylvanian and one in St. Louis. Did you try a support group for recommendations? I go to the one in Manville Library. If there is anything you need help on don’t hesitate to write back. As you can see from my profile, I am located in Madison NJ. Good luck!
Hi JanR!! I can’t help you as I live near Edmonton, AB, Canada, but I also have SCA2. I was diagnosed in 2008 presymptomatically, when my birth mother was diagnosed. I have developed (age 62 now) several typical symptoms but not others yet , as well as having other unrelated (I assume) health issues . Good luck !!