Dravet UK Conference 2012: Tweeted Notes

I attended the 2nd biennial Dravet Conference in Warrington on Sat November 2012. The conference was organised by Marie Baker and the trustees from the charity 'Dravet Syndrome UK'.

I have have been a member of Dravet Syndrome UK for about 3 years, shortly after my son was diagnosed with Dravet Syndrome when he was 4 years old. They are a small but growing charity supporting families and funding research into Dravet Syndrome. Dravet Syndrome can be diagnosed clinically or by a genetic test, it causes very difficult to control (intractable) epilepsy, developmental delay, autism, and movement disorders. I attended as a parent and as an exhibitor of Trabasack, which was developed for my son, and which can be a beneficial aid to children with the condition.