Genetic Alliance UK "Patient Charter on Access to Medicines in Scotland" Parliamentary event

Dear Alan,

Invitation to attend Genetic Alliance UK "Patient Charter on Access to Medicines in Scotland" Parliamentary event

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Our parent organisation Genetic Alliance UK would like to invite you to attend their "Patient Charter on Access to Medicines in Scotland" Parliamentary event.

When: 1pm to 2.30pm, Wednesday 23rd March 2016
Where: Adam Smith Room, Scottish Parliament

Genetic Alliance UK's third Patient Charter, on access to new medicines in Scotland, will provide patient perspectives on the processes by which new medicines are available on the NHS in Scotland and will provide recommendations for further improvements to the Scottish Medicines Consortium appraisal process, Individual Patient Treatment Request Process and New Medicines Fund.

The Patient Charter will be the third in a successful series of ground breaking reports, giving patient perspectives on the processes by which new medicines are available: in April 2014 “Patient perspectives and priorities on NICE’s evaluation of highly specialised technologies” and in October 2014 “Patient perspectives and priorities on NHS England’s commissioning of medicines for rare diseases”.

The meeting will be sponsored by Malcolm Chisholm MSP and chaired by Alastair Kent OBE. The meeting will feature a panel discussion with the following confirmed participants:

Ann Lee - Chief Pharmaceutical Advisor, Scottish Medicines Consortium.

Jennifer Dickson - Senior Public Involvement Co-ordinator, Scottish Medicines Consortium.

Alastair Kent, OBE - Director of Genetic Alliance UK, Chair of Rare Disease UK.

Lesley Loeliger - Founder, PNH Scotland

Natalie Frankish - Development Officer for Scotland, Genetic Alliance UK

Refreshments and a light lunch will be provided.

To register for the event click here.

If you have any questions please contact Genetic Alliance UK's Policy Officer, Louise.