How do you explain ataxia to people?

HišŸ™‚ Yes, I’ve noticed Speech issues as well, not all the time though… It’s as though I sometimes get tongue tied. Volume and pitch can also be a problem, but I don’t actually notice this myself (to me I sound the same as always). One to one conversations are generally ok, but in groups I have trouble being heard and keeping up my end of the conversation.
I was formally diagnosed in 2011, but I’ve been accumulating symptoms since the early 1990s.
It’s good to know that you are ok otherwise :slightly_smiling_face:

Yep it’s very difficult at times explaining to folk about Ataxia. I have just spent a week in York hospital where I bad an operation for a serious burst appendix. The operation was successful but I had an interesting week explaining to some of the nurses and other patients that my ā€˜staggering’ to the loo etc was not a result of my operation but caused by Ataxia. Yes I’m very weak after the serious op but thankfully I’m eating well and building up my strength again. Hope everyone is keeping as well as can be…

Ian

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:slightly_smiling_face: Be very kind to yourself…I hope convalescence goes well…

I also struggled being in hospital after surgery, you would think staff would refer to a patient’s notes and take into account any other condition that caused ā€˜difficulties’. But all too often they’re only concerned with the immediate diagnosis.

Thanks for your reply Beryl, I’m pleased to say I’m recovering nicely, although very weary at times, also I had some good news from my local surgery saying that my type 2 diabetes was now in remission due to good diet control… It’s nice to receive some good medical news. Hope you are keeping well.

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:slightly_smiling_face: A friend had very good results after keeping to her diet, a bonus was weight loss :slightly_smiling_face:
I’m taking every opportunity to enjoy our fleeting good weather, I hope you can get out for some VitD :slightly_smiling_face:

Interesting concept. Can anyone explain what causes or at least contributes to Ataxia? Thanks; I had a different diagnosis so this we have to call a working diagnosis for me. :confused:

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Gene mutations or an injury causing acute or degenerative brain damage is a short, lay person answer. I’m sure there are better explanations but I saw this unanswered from July.

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:slightly_smiling_face:Yes…that’s it in a nutshell…although there are other causes (triggers)…
Many people have an MRI showing Cerebellar Atrophy, which would seem to be expected, but surprisingly some people have a diagnosis of Cerebellar Ataxia and yet have a normal Cerebellum, no Atrophy…

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