Keep the hope in your heart

General
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I know it's hard. I cannot do it all the time.

I have moments of fears and frustrated everyday. I have times to cry a lot a lot...

Sometimes I wonder if God is too busy to take care of others that He overlooks me.

Sometimes I wonder the mysteries of human brain could perform something out of the expectation of neurologist and scientist though not sure what it is.

Human is a complicated nature, there are so many elements within, psychology, psychiatric, physical condition, intelligence, mindset, belief.... abstract things... One thing that most professional or philosophers agreed is: our subconscious mind is very powerful - what we belief could become true. This involves the psychological state and perception of how we perceive things that happen in life.

A recent miracle. "A college dropout Jason Padgett becomes accidental mathematical genius after brutal mugging. Neuroscientist and philosophy professor Berit Brogaard explained that damage caused by the attack has forced Padgett's brain to overcompensate in certain areas that most people don’t have access to, transforming him into an "acquired savant." " (extracted)

http://www.huffingtonpost.com/2012/04/30/college-dropout-jason-pad_n_1464835.html(news)

http://fineartamerica.com/profiles/jason-padgett.html(Jason's drawings)

Another story. A famous neurosurgeon has decided to follow Jesus in his age of .... I think around 50. He is very experienced with outstanding performance on handling medical cases. He said he doesn't believe in God in his young age. After all those years, he realizes there are so many mysteries of human brain that they (neuroscientists) don't know yet.

Neurologist will tell us something that they have learned from books or something they have discovered in neuroscience. When will they tell us more? I think "after" they discover more.

I don't mean their findings aren't worth to listen, but should keep it as a reference level. Same disease in different persons will turn up differently. Why? They can't predict the trend of gene because they know less. What if they think they know but in the end that is a misconception? Sometimes I wonder if the fight of ataxia is a journey of discovery, not a life that can be concluded by any neurologist.

If we lose faith, confidence and hope, our body will response to that and this is no good to our overall performance. When there is no cure nor sufficient findings to help us and get well, we have to help ourselves, don't give up. Keep our faith and hope, believe we can do better. We can do our part and let the body to integrate every good element within us and manifest it. Maintain our body, mind and soul at a good level is very important.

If life is a show that is no rehearsal, do you want to play a good show of yours?

Charmaine

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Great post Charmaine!

I have little faith in doctors anyway as they have been wrong frequently about my abilities throughout my life! …but I understand that some people think that what a doctor says must be true so therefore lose hope.

I take my inspiration from the many people I know that are worse off than myself, some famous. Prof Stephen Hawking for example was told in the 60’s he had months to live…didn’t he just turn 70 this last January? …seems he outlived that prognosis by a good 40 years!

I found doing my own research and studying how our muscles worked helped me understand what was going wrong and doing a routine of Forced Exercise has helped me greatly. I don’t think we should take a doctors word as an absolute that they cannot be wrong and we are doomed as soon as we are diagnosed.

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Thanks a lot Kati : )

I am so anxious to know who has the same experience and understand my point of view. Yes, that's exactly what I am trying to say, doctors could be wrong. Their so-called diagnosis is kind of guesswork or prediction. We should avoid ourselves to fall in self-fulfilling prophecy.

A recent real case. It is supposed that the next generation of SCA patient will have an earlier onset than the previous generation. If it is paternal inheritance, the progress of deterioration is faster. But there is a case occurred in Taiwan this year that draws everyone's attention. A father has SCA and his onset age is 40. His 2 daughters who inherited the disease, the onset ages are 45 and 55, with 5-10 years later than their father. As the onset ages are later than their father, their deterioration have just begun. That's why it makes me wonder how much do the neuroscientists know at the moment.

Another story of Mr. Wright 1957. http://mindhacks.org/miraculous-healing-with-the-mind/

This story is reflected that willpower and belief is very important. It will affect our body and mind.

Kati said:

Great post Charmaine!

I have little faith in doctors anyway as they have been wrong frequently about my abilities throughout my life! ..but I understand that some people think that what a doctor says must be true so therefore lose hope.

I take my inspiration from the many people I know that are worse off than myself, some famous. Prof Stephen Hawking for example was told in the 60's he had months to live.....didn't he just turn 70 this last January? ..seems he outlived that prognosis by a good 40 years!

I found doing my own research and studying how our muscles worked helped me understand what was going wrong and doing a routine of Forced Exercise has helped me greatly. I don't think we should take a doctors word as an absolute that they cannot be wrong and we are doomed as soon as we are diagnosed.
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Well I have worked out that this is my 7th year as wheelchair user, (not counting the first 18 month it took to reach that stage and diagnosis) and still living independently with the help of my dog. I am applying for another assistance dog with the hope they will be able to find me one by next year and will then work for me another 10-12 years before that dog retires too.. so hopefully taking me to 20 years managing to live independently with the help of 2 dogs.

I'd like to manage at least 15 years living independent before I have to consider full time PA's, but 20 years is my goal, nothing to lose by trying!!

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Hi Kati

That means you have to take care of the dog too? Is it difficult?

Do you mind to share with me how does the dog assist you in life? Thanks.