Jack here I am going to ask my family doc about vitamins including cannabis that might help the pain and balance from the disease . Has anyone got positive results from pills? thx
Hi Jack
As you probably already know there isn’t a medication specifically for Ataxia.
But there are treatments and medications to help with the associated symptoms.
Have a good look on the site, people quite often post recommendations when
they try something and find it’s beneficial.
You can ask to see a Vestibular Therapist. They specialise in treating balance
disorders with exercise programmes. Sometimes these can make an amazing
difference.
But sadly there is no magic wand, yet.
It’s mainly a case of making sure you eat well, exercise as much as your condition
permits, don’t overtire yourself and try to avoid stress.
Speak to your Doctor, being proactive does actually help, it makes you feel more
in control of this confusing debilitating condition 
xB
I live in Colorado where Marijuana is legal. It seems as though many think it's the magic cure for everything. I don't share that belief. I don't think you're suggesting that either.
I do take supplements including CoQ10, B12 (liquid drops for under the tongue), multi vitamin/mineral, & Alpha lipoid acid. I am not a medical professional. :-)
Julie in Colorado said:
I live in Colorado where Marijuana is legal. It seems as though many think it's the magic cure for everything. I don't share that belief. I don't think you're suggesting that either.
I do take supplements including CoQ10, B12 (liquid drops for under the tongue), multi vitamin/mineral, & Alpha lipoid acid. I am not a medical professional. :-)
slippery said:
Hi Julie thank you very much, I will start COQ10 along with VitE as a trial and maybe cannabis DCW type
that has helped persons with Parkinson' s
Julie in Colorado said:I live in Colorado where Marijuana is legal. It seems as though many think it's the magic cure for everything. I don't share that belief. I don't think you're suggesting that either.
I do take supplements including CoQ10, B12 (liquid drops for under the tongue), multi vitamin/mineral, & Alpha lipoid acid. I am not a medical professional. :-)
I do find that anything that misses with my head makes me much more unbalanced. Since there is no magic bullet available I stick with exercise and eating the best I can. Eliminating stress helps. It is what it is. Make the best of your daily life that you can manage.
I am gluten-sensitive and may also have glutenataxia. When i saw I was stuck on a certain healing level, I did a i did a hair analaysis with James Hopson, my health practitioner and his doctor, it turned out I had heavy metal toxicity and was not absorbing my supplements.
I suggest trying osmething alternative instead of going directly to pills.
After 3 months, the report re-test showed a major improvement in both. It is more accurate for certain issues than blood tests, that can give false positives and negaitive.s
Julie, How do you know if yu are absorbing your supplements? I spent thousands of dollars on them and never felt major improvement until I decided to do he hir analysis I mention below. with the analysis, I received a detailed report of my heavy metals and minerals, and after 3 months of doing the personalized supplements, dietary suggestions and other advice, there was a significant absorption rate and improved numbers on the 3-month report. It felt good to see the actual improvement on the chart from the first report.
I was also advised to use a near distant infared Solar Lamp. I use it 3 times a day, and it is very relaxing. Does what a sauna does without the heat. I don't tolerate extreme temperatures.
Hope this helps.
Blessings!
I haven't found a magic pill but I really think I'm managing my ataxia pretty well. I believe in eating foods as my meds.I try to do as much as I can naturally.
I was diagnosed having Sporadic SCA in 2006. In 2007 I had a blood test for Gluten sensitivity. I came out on the normal end meaning I didn't show any problem with it. But my Dr. suggested I go off anyway for a few weeks just to see how I felt. She said some people rang low on the scale but have just a little sensitivity to gluten anyway. After letting go of gluten for about 6 weeks I noticed my sciatic nerve pain left. That was enough for me. Since it wasn't that hard compared to the pain I lost. I felt it was a no brainer for me. I am still off all gluten to date. My Dr. said it's like having a guarantee that the healthy foods and all the vitamins and minerals I'm having will get absorbed. So I'm still Gluten Free. I don't try to substitute gluten free foods for foods I was used to. I don't find it hard to do at all. Letting go of all flours and refined sugars makes it easier to do I think.
I have had an MRI every year just to watch the progression of my ataxia in my cerebellum. We noticed since I stopped eating food with any kind of flour, refined sugars (NOT WHOLE PEICES OF FRUIT), Alcohol, preservatives, and additives nothing in a bag or box my MRI's have shown that the progression of my cerebellum degeneration has stopped. I now am only getting an MRI every 2 years. My Dr. said once the cerebellum starts you can't stop it. But he also said clearly mine has stopped but he doesn't understand why. He wants me to have a MRI every 2yrs now because he doesn't believe it's stopped totally. I know it has stopped!.
I really work on my physical, emotional, spiritual, and mental health to be as balanced as possible.
My thought is to stay as healthy as possible so when they do find that magic pill, cure, my body will be as healthy as possible for me to be able to handle it and be a candidate for it.
Good luck on your journey with this ataxia. It sure is challenging to say the least. Stay as positive as possible about your outcome I really believe that will make a huge difference for you.
Thank you so much Jeannie
Your common sense approach gave me a plan to start treating my disease the same way as you did
Jeannie Ball said:
I haven't found a magic pill but I really think I'm managing my ataxia pretty well. I believe in eating foods as my meds.I try to do as much as I can naturally.
I was diagnosed having Sporadic SCA in 2006. In 2007 I had a blood test for Gluten sensitivity. I came out on the normal end meaning I didn't show any problem with it. But my Dr. suggested I go off anyway for a few weeks just to see how I felt. She said some people rang low on the scale but have just a little sensitivity to gluten anyway. After letting go of gluten for about 6 weeks I noticed my sciatic nerve pain left. That was enough for me. Since it wasn't that hard compared to the pain I lost. I felt it was a no brainer for me. I am still off all gluten to date. My Dr. said it's like having a guarantee that the healthy foods and all the vitamins and minerals I'm having will get absorbed. So I'm still Gluten Free. I don't try to substitute gluten free foods for foods I was used to. I don't find it hard to do at all. Letting go of all flours and refined sugars makes it easier to do I think.
I have had an MRI every year just to watch the progression of my ataxia in my cerebellum. We noticed since I stopped eating food with any kind of flour, refined sugars (NOT WHOLE PEICES OF FRUIT), Alcohol, preservatives, and additives nothing in a bag or box my MRI's have shown that the progression of my cerebellum degeneration has stopped. I now am only getting an MRI every 2 years. My Dr. said once the cerebellum starts you can't stop it. But he also said clearly mine has stopped but he doesn't understand why. He wants me to have a MRI every 2yrs now because he doesn't believe it's stopped totally. I know it has stopped!.
I really work on my physical, emotional, spiritual, and mental health to be as balanced as possible.
My thought is to stay as healthy as possible so when they do find that magic pill, cure, my body will be as healthy as possible for me to be able to handle it and be a candidate for it.
Good luck on your journey with this ataxia. It sure is challenging to say the least. Stay as positive as possible about your outcome I really believe that will make a huge difference for you.
Judita,
I have regular blood tests that show what my levels are. If it's in my blood it's getting to all the parts of my body, not just my hair.
Since I have Celiac Disease I've gone a long time (decades perhaps) with far too many deficiencies. It's my intention to get as much nutrients from food sources as I believe there are many things we don't yet know about the synergistic micronutrient properties for whole foods. I do nutrient dense smoothies daily. Organic foods only, as pesticides can have tremendous damage to nervous system.
What I can't get in enough foods I supplement. Many of the supplements I take are sublingual (liquid under the tongue). That affords a better chance of getting absorbed. No guarantees, but I do my homework.
While I'm sure a solar lamp works for you, I've already had some pre-cancerous spots removed from my skin. I'm not pushing my luck. ;-) I take a sublingual Vit D3.
Take care!
Judita said:
Julie, How do you know if yu are absorbing your supplements? I spent thousands of dollars on them and never felt major improvement until I decided to do he hir analysis I mention below. with the analysis, I received a detailed report of my heavy metals and minerals, and after 3 months of doing the personalized supplements, dietary suggestions and other advice, there was a significant absorption rate and improved numbers on the 3-month report. It felt good to see the actual improvement on the chart from the first report.
I was also advised to use a near distant infared Solar Lamp. I use it 3 times a day, and it is very relaxing. Does what a sauna does without the heat. I don't tolerate extreme temperatures.
Hope this helps.
Blessings!