I’ve seen several references to Bill Nye …his family diagnosis is SCA27b.
Bob of Bob and Brad - online physical therapists - also has recent Ataxia. I reached out to him telling him of this site a couple of times but he has never answered. Maybe if others reached out he would join.
Bob Schrupp was diagnosed with Ataxia, a neurodegenerative disorder affecting the cerebellum , a few years ago. This condition has challenged his balance, coordination, and speech. Despite these obstacles, Bob’s resilience shines through. Using his expertise, he’s developed techniques to manage these challenges.
His Ataxia techniques https://www.bobandbrad.com/resource-category-page/ataxia
Living in the UK…I don’t know of Bob and Brad but…it’s likely that people who are familiar with them, and are diagnosed with ataxia themselves…will be interested to hear what a ‘celebrity’ has to say about a diagnosis of ataxia.
Bob and Brad are online and very popular. If you can go online then I would guess you can see them. Am I wrong?
I ‘googled’ them….despite their popularity in the U.S. …here in the UK I suspect they’re largely unheard of…
It’s useful to be able to access Physiotherapy advice without having to leave home.
Recently…he added this to his extraordinary awards…
President Biden Announces Recipients of the Presidential Medal of Freedom
William Sanford Nye
Bill Nye has inspired and influenced generations of American students as “Bill Nye the Science Guy.” His dedication to science education continues through his work as CEO of the Planetary Society and as a vocal advocate for space exploration and environmental stewardship.