Does any one know of any famous celebrity that has [had] Ataxia?
I was surprised to learn on a pbs program about Bill Nye the Science guy that his dad and brother & sister I believe have Ataxia. He doesnât but it looks like its definately in his family.
i think people with Parkinsonâs and MS have ataxia, but the more severe diagnosis is the one thatâs stated.
Yes, that is very possible.
Linda Ronstadt has severe Parkinsonâs. Iâve never heard of a celebrity with spinocerebellar ataxia. It is so rare.
Micheal J. Fox, star of t.v. show Family Ties and Back to the Future among other shows. Has Parkinsonâs which has ataxia as a characteristic. He has become quite active in Parkinsonâs research. He has injected himself into the Parkinsonâs society and advocates on a regular basis. I donât know of any other stars or public figures afflicted with any other type of ataxia specifically.
Unfortunately, thatâs what I was referring to. ATAXIA the illness and not ataxia the symptom. But it is very rare. I was hoping for a present person because we need a voice.
If you read further down he describes it as ataxic cerebral palsy
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If anyone is going to the AtaxiaUK Annual Conference this year in Derby, theyâll be able to meet James Moore xB
Bumping this topic. Time has passed. A spokesman would be a big plus since Ataxia is kinda unknown. We need constant conversation such as Michael Fox with Parkinsonâs.
As previously mentioned, Bill Nye âthe science guyâ.
But while Nye dreams of outer space, itâs his own DNA that worries him.
Copied from www.cbs.com
âMy family has an affliction called ataxia,â he said. âMy sister has it real bad. You walk like youâre drunk. And my sister has a walker. Thatâs how she goes everywhere. And apparently itâs not a strength thing. It has to do with your balance, which comes from your cerebellum.â
âBut you donât have symptoms of this?â
"Yeah, I do. Two years ago I noticed it
âFor someone who sees this from a scientific viewpoint is this a bit scary for you?â asked Braver.
âIf youâre not scared of this, I donât know what youâre scared of.â
But one thing he thinks can stave it off is exercise, which is why youâll often find Nye at Rustyâs Rhythm Club at a local Elks Lodge, swing dancing the night away.
Braver said, âThe last place most people think Bill Nye the Science Guy would be is on a dance floor at an Elks club!â
I think Donald Trump may have ataxia , watch him walk down steps or stairs he watches his feet closely and holds the hand rail also he need assistance while negotiating ramps. Add the occasional slurring of words while making speeches and you have the classical symptoms of Ataxia.
What do you think ?
Even if he really has it, there is absolutely no way that he would admit that he has a neurological problem. Thatâs just the way heâs built. Just look at how he has reversed himself with the election coming up. Not being political here, just expressing an opinion.
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OMG, so thatâs his problem. Hmm.
Donât get me started on Trump.
Chas521 is right. We need a spokesperson for Ataxia. Doctors donât even know about it!
OoooohhhhhâŚcareful there! We try to stay well away from politics and religion on Benâs Friends: long experience has taught us that when conversations head in that direction, it never ends well.
We do have a section on each community for religious thoughts and discussions.
(You can click on the picture: itâs linked.)
Maybe we need another area for political discussions? No, I donât believe weâre going to go there. LOL
Seenie from Modsupport and Admin
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I stayed away from politics since it isnât helping anyone. But I still would like a spokesman.
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But yes, having a celebrity spokesperson really helps with recognition of a rare disease. I have Psoriatic Arthritis, and people still say âOh, thatâs what that golfer whatsisname has.â Yes indeed: Phil Mickelson put our disease on the map.
Seenie
I totally get it. Sorry.
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Okay, one of us will have to become famous. (I call not-it)