hi emmy! i'm also 30 years old, have SCA 8, and I recently had a baby. Let me know if u wantto chat.
Hi Lou,
Nice to virtually meet you. ;-) I have just joined recently too hoping to get advice and be of support as well as find support. My partner and father of my youngest has just had a general diagnosis of CA and dystonia at 44 yrs old. He hasn't joined the group yet as he is still digesting the crappy news and he's also in a lot of pain at present. (today he is being a good little lab rat and trying a 'yet another drug' for the pain in his joints.) Hopefully i can persuade him to join and converse with all the other lovely members on here at some point in the future. You are all a great inspiration and this support group really is something else.I really find it a great source of support.
Tracie