Rare disease UK agm

General
1

At the Rare disease UK agm , on Tuesday

The The Rare Reality – an insight into the patient and family experience of rare disease was launched -

it can be seen via http://www.raredisease.org.uk/documents/patient-experiences-2015.pdf

along with other reports http://www.raredisease.org.uk/documents-to-download.htm

2

Thanks Alan, I managed to p.4 and will have to have another stab at it:-) I’ve recently donated DNA (yes again), for Newcastle NIHR Bioresource (National Istitute for Health Research). I believe that we should all participate in research whenever possible.

Volunteers are being recruited, with and without health problems, from Newcastle and the surrounding areas. Taking part will help researchers investigate why some individuals have a disease :slight_smile: xB