This is Ron and @ 69 years old Ataxia sucks(actually @ any age).Today I'm gratefull for the following:All my life I've been a collector of one thing or another.When I was a kid,it was baseball cards and as I became older it was antique guns,swords bayonets and police badges.Even though my wife became knowledgeable I didn't want people to take advantage of her when I was gone.I sold all my guns,swords and bayonets and just recently sold all my police and fire collectables @ my terms and price.That means a lot to me;for what its worth.
You are not going to meet your maker for quite a while yet Ron:):) But selling off collectables at the right time can be wise!
Take care, hugs from Holland, Elle.
Thanks I really needed an online hug today;thanks Elle
You are more than welcome Ron:) And, YES..ataxia sucks. BUT, after all these years I consider it as a GIFT. Sounds strange huh. Best to have it myself than my children or husband. Now THAT would be a major hurt,
Another hug..take care, Elle
mibadge said:
Thanks I really needed an online hug today;thanks Elle
You are an Angel,Elle..
Elle Strik said:
You are more than welcome Ron:) And, YES..ataxia sucks. BUT, after all these years I consider it as a GIFT. Sounds strange huh. Best to have it myself than my children or husband. Now THAT would be a major hurt,
Another hug..take care, Elle
mibadge said:Thanks I really needed an online hug today;thanks Elle
Well thank you Ozzy:) Just what I needed…you made my day!
Does anyone else have a lot of leg pain associated with ataxia Ron
Hi Ron My legs always feel heavy and occasionally very restless, annoyingly this is usually when I want sleep
Restless Leg Syndrome is common, and it’s possible to try medication to get relief:slightly_smiling_face: I haven’t as yet done this, holding out as long as possible
I have most pain in my right arm, the muscle tightens/spasms during sleep and often wakes me. It’s now automatic to lift the arm above my head and stretch to relieve tension xB
Hi Ron, I have burning pain in my legs all the time. I have sharp stabbing pain a few times a day and cramps at night a few times a week. I also have restless legs a few times a week. I tried Gabapentin but nothing changed. Like Beryl said, sleep gets disrupted.
Well I suspected as much but life goes on,I guess it could be worse,at least I still have feeling and an understanding wife.Thankyou for your reply.
An understanding spouse/partner is not to be underestimated. My husband hasn’t always been this way, I thought it would never happen.
If anyone is looking for pain relief/help with symptoms, it’s
always worth looking at the Fact Sheet relating to Medications on www.ataxia.org xB
Amen…I couldn’t agree more,without my wife and all her help and support,I could never get through a day alone .mibadge
Yes ! Ron, I have severe left leg pain with sensory ataxia. Just diagnosed last month. I sure could use guidance and help from all of you angels out there!
My Doctor just put me on Tizinodine taken 3 times a day. Cleared up my muscle spasms with an hour. Baclofin is an antispasmatic that also works. Ask your Dr.
I am grateful for the sun and the colors of the leaves in the fall. My children, my family, and the ability to walk. I am grateful for the moon , wind, rain and all the universal elements of Mother Earth. We are all just holding hands walking each other home.
I couldn’t have put it better…life is either good or bad it all depends on you. Ron