Splints

General
1

Hi,

I have FA and been in a wheelchair full-time for about 10 years now. I suffer from spasms in legs and on Baclofen. My legs tend to extend straight out with my feet pointing fowards in my chair unless I tie them to my foot plats. They do relax down when I am still not when I'm pushing or being pushed though.

I do have splints, which help when I get them on but cannot tolerate them for long as my feet want to roll on their sides causing a lot of pressure to build on the edges of my feet.

My legs and feet are getting worse, so I really need to use the splints more but can't tolerate them. Has anyone else had similar problems? Any suggested ways to help?

Cheers,

Dave

2

Hi Dave

I’m sorry to say I’ve no advice, I was just struck that I could have written exactly the same as - word for word - I have the same problems.
I know anxiety makes it worse, I too would be interested in your replies.

Sophie

3

Hi
I also suffer the same as you both but
they are a nessecery evil.my splints also bruise my legs and ankles as well.

4

Dear Dave, Although I have ataxia, I do not have FA. Have you spoken with your neurologist about this problem? Also google "splints for neuro-muscular disease", as you may find a useful site with something more comfortable! My best to you..., ;o)

5

your age dave?

6

Thanks all, sorry to hear others are having simialr problems - although, glad I'm not alone.

I'm in my late 20's. Neurologist is suggesting to surgery to extend achellies (not sure technical name) but not sure how practical this is given I live on my own (recovery could be long and painful) plus not sure it will solve the rolling. Being referred to a foot doctor (again, sorry i don't know technical name) so see what he/she says.

Dave