I was diagnosed with Ataxia a little over a year ago. I have both tinnitus and hyperacusis for several years. I am wondering if anyone with Ataxia has any experience with these other problems.
I have frequent mild tinitus but then I also have occasional severe boughts of it that freeze me in my tracks makes me want to cover my ears and feel like my body is under a severe pressure. I frequently have to brace myself as it is usually followed by a complete loss of balance and slurred speech. I am super sensitive to low frequncy noise and bass. I never realized it has a name.
I have constant tinnitus and never knew the name for noise sensitivity, now I do. You are not alone in this.
This is the first time I’ve ever heard of Hyperacusis and what it means.
Certain noises definitely make me anxious and extremely irritated.
It’s when levels reach a particular pitch.
The worst experience was in a themed restaurant, it was motor racing.
My husband and children were having a great time, I was reduced to tears,
couldn’t eat, I just wanted to leave. In fact I think I actually did have to go
outside. I can’t bear to watch motor racing on TV either.
Fireworks have a similar reaction, I hate celebrations with fireworks. This
makes you feel like a party pooper, it’s spoilt a lot of outings with the family.
Re tinnitus, I don’t have it but my husband does. Because of SCA I tend to
mumble a lot and he doesn’t hear me Happy days xB
I have a constant tinnitus and occasional hyperacuity. In fact, the tinnitus was one of the primary reasons I was misdiagnosed with Menier’s disease, a misdiagnosis I lived with for seven years before finally discovering that it was actually SCA that I have.
I have constant Tinitus and sometimes I get clicking and a light sabre sort of noise when I turn my head. Horrible, I hate it.
By the way, hi Beryl, I’m in Tennerife now xxxxx
Tenerife, you lucky duck have a good bit lie in the sun for me Bev xB