Eastern Ontario, Canada
I live in Port Orchard, Washington across the sound from Seattle. I felt more alone , not knowing anyone to talk to about how I felt or things changing in my body, and to my body. I have Cerebellum Ataxia , so many people of this site are going thru the same thing.
I live in Ladylake, Florida
Kenora, Ontario up in Canada
Western Sydney NSW, down under.Lets see what the NDIS can offer. Stem cell therapy would be nice but as usual Australia will be 20+ years behind than other countries , gotta smile and get on with it.
Thanks -Des Moines, Iowa
Carnforth, Lancashire, England
Hi everyone! I’m from Cape Town, South Africa.
hi friendly face, my name is bobby[ refinisher] on living with ataxia.
finally someone else on this site has cerebeller ataxia. i consider myself lucky cause i know there are people out there worse of than me. i was diagnoged in 11-2015. im 59 y/o and cant work anymore. that part i dont like. dont like the syptoms but i have to put up with them.i am having all kinds of problems on this new site. if you want to talk more write me at my email at
camper1211 (at) comcast.net
Note: format of email address disguised by S from ModSupport for protection of member.
bobby
hi, i also have cerebellar ataxia. im 59 y/o and live in n.j. ive been having problems with this site so if you want to talk email at
camper1211 (at) comcast.net
Note: format of email address disguised by S from ModSupport for protection of member.
I live I the N.E. of the UK. My ataxia was finally diagnosed last year as being Genetic Recessive, linking me with the mutant gene Syne1 - SCAR8.
Carmarthenshire, Wales
Ataxia (Unknown cause)
although HSP (SPG7) has now been identified
(this diagnosis of HSP is increasingly being recognised within the medical community, at last !!!)
I think Linda from Ataxia South Africa is on this site
she is from JoBurg
refinisher. i live in new jersey. i have cerebellar ataxia
It was hard for me at first, but am getting use to the site. I also have cerebellar Ataxia and put up with all the tings every does. Is just apart of like now… I am in Washington, don’t like all the rain, but does make for a pretty state.
hi jubie, im in new jersey. i hear washington state is nice but does get a lot of rain expecially in seattle. i was diagnosed in 11-2015 after 6 months of having the symptoms. i consider my self lucky considering what i hear from other people who have ataxia.
hi Bobby nice to see you on the site. We are across the Sound from Seattle, but the weather is about the same. I feel the same; there are so many people worse off then me , but we all do what we can. I have the symptoms everyone else does. Am on a walker when awake, electric wheelchair for outside. Is nice cause can’t walk but still goes down the road.
jubie, what i mean is by im better off than other people is im not using a cane or wheelchair. my condition is progressive but in a year there hasnt been that much of a change.how long have you been out in washington? how long have you had cerebellar ataxia?
its taken me a while to find info on it researching it cause its a rare condition and at of all of the ataxia conditions our ataxia is the least researched.im 59 y/o & cant work any more cause of the ataxia. that part i dont like. i want to work but it took me a while to understand that i cant work anymore. did you symptoms get worse over time?
I was diagnosed 27 years ago, but now that I look back my Mother said I was always stumbling, and things I remember now. Like having no balance. I am 73 now an am not able to walk cause of my balance and eqlibrium. I was born in Tacoma and have lived here in Washington except when my husband was in the Army for 20 years My Ataxia has been downhill since I was diagnosed. 20 years ago I could walk fine. I still stumbled, but about 10 years ago I started using the walker, just at times. After that things just progressed and have to have the walker full time. When I go out side I have a Jazzy(electric wheelchair) and it is easy to use.
Houston Texas ( Space City )