Anybody else out there diagnosed with SCA42 recently?
I was going to suggest asking this on a Facebook Ataxia Support Group, you’re already a member
There are a couple of people on another FB group, National Ataxia Foundation xB
Forgot about NAF. Thanks
I was tested positive for it a year ago. Happy for an answer. Trying to research it now. Not much out there on sca42.
Where do you live? Are you on Facebook? I know of a number of people with sca42 and many of us have connected there.
Susan
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