Acute Cerebellar Ataxia advice please

General
1

Hi there,

I'm not sure if anyone can help, but my 3-year-old daughter was diagnosed with acute cerebellar ataxia, which was caused by bacterial pneumonia. If you look this up, it has a typical recovery time of 10-21 days but can take months in some cases.

She woke up, unable to walk and vomiting about 17 days ago. After they diagnosed it and gave her antibiotics for the pneumonia, she started doing great. Up until today, she was walking, running and no longer vomiting (she hadn't vomited in 10 days after initially throwing up for 7 days straight). However, today, she started vomiting again and complaining about her head. She keeps lying back down despite being able to walk yesterday.

The way the docs explained it was that once she started healing (walking was the key), she was better. So, I guess my question, for those who have experienced the same diagnosis, is: Is it common to relapse like this after appearing to get better? Should I be worried that there is something else going on that they haven't found yet? She had an MRI and spinal tap.

Thank you,

Liz

2

Hi Liz:slight_smile:
You may not have had a reply simply because no-one has experienced this specific type of acquired ataxia.

There are several Facebook Ataxia Support Groups, looking on them might answer your query.

It is acknowledged that Ataxia symptoms acquired after trauma/illness can improve or disappear on recovery. The best advice will be from a Neurologist who actually specialises in Ataxia, and who will be able to evaluate the results of tests. xB