Anti GAD Associated Cerebellar Ataxia

General
1

Would like to hear from anybody who has this form of the complaint. All the best

2

What is anti GAD?

3

I’m being tested for this Dermot - are you on the ataxia UK site as well? FelingOurWay

4

I 'm sorry, but I still don't understand. What is anti GAD and Dermot? No. I live in the USA, so I'm not on the UK site, only this LWA site. ;o)

5

Hi, GAD is an anti body which causes mayhem by destroying the cerebellum bringing on ataxia symptom eg poor balance and coordination, nystagmus and the like. It also causes type 1 diabetes, arthritis and assorted auto immune issues. Plasma exchange which involves 5 days in hospital is the only treatment if not caught early enough. IvIG therapy can be useful at the start but it can be very aggressive if not dealt with quickly. But every ataxia case is unique, hence the difficulties around treatment and lack of knowledge by neurologists.

6


thanks Dermot -didn’t know about it being aggressive. Not got final diagnosis yet. Will keep you both posted


Dermot Rathbone said:

Hi, GAD is an anti body which causes mayhem by destroying the cerebellum bringing on ataxia symptom eg poor balance and coordination, nystagmus and the like. It also causes type 1 diabetes, arthritis and assorted auto immune issues. Plasma exchange which involves 5 days in hospital is the only treatment if not caught early enough. IvIG therapy can be useful at the start but it can be very aggressive if not dealt with quickly. But every ataxia case is unique, hence the difficulties around treatment and lack of knowledge by neurologists.

7


hello rose! Read many of your posts and love the way you support people in so much of what you write. Much appreciated.

Have a look at the ataxia UK site - you might like to join- and I love chatting both here and there!


rose said:

I 'm sorry, but I still don't understand. What is anti GAD and Dermot? No. I live in the USA, so I'm not on the UK site, only this LWA site. ;o)

8

Not heard of Anti GAD but never surprised to hear of different types of ataxia. I know MSA is an aggressive one too.

Best wishes to you guys. Patsy

CA/70/Colchester, UK

9

I have been told that I have Anti GADS but the dr has not told me that it is a problem. My ataxia is progressing thou … Keep having to have scans to see the. Progress of the cerebellum damage

10

Thanks for the explanation Dermot! Now I understand what anti GAD is, although I'd never heard of it. It's good to know there's treatment if caught early enough. Also, I appreciated you kind comment, FeelingOur Way! Guess with the frustration and challenges that ataxia brings, a positive attitude is the ONE thing I have control over...,ha! Yes, I will check out the UK site... ;o)

11


hi Dermot Made you a friend so we can chat if you'd like to. I'm on ataxia uk too so we could chat there too. Only if you want to. Dermot Rathbone said:

Hi, GAD is an anti body which causes mayhem by destroying the cerebellum bringing on ataxia symptom eg poor balance and coordination, nystagmus and the like. It also causes type 1 diabetes, arthritis and assorted auto immune issues. Plasma exchange which involves 5 days in hospital is the only treatment if not caught early enough. IvIG therapy can be useful at the start but it can be very aggressive if not dealt with quickly. But every ataxia case is unique, hence the difficulties around treatment and lack of knowledge by neurologists.

12

Hi dermot I have been put on a gluten free diet as I have been told that the guten causes the anti gads how I don’t know not seen any change yet but if it helps I will keep going
Karen

13

Hi Dermot

Just been told they are considering immunosuppression

Any advice or info on this?

Hope you are doing ok.

News when you can

Ruth



FeelingOurWay said:



hi Dermot
Made you a friend so we can chat if you’d like to.

I’m on ataxia uk too so we could chat there too.

Only if you want to.

Dermot Rathbone said:

Hi, GAD is an anti body which causes mayhem by destroying the cerebellum bringing on ataxia symptom eg poor balance and coordination, nystagmus and the like. It also causes type 1 diabetes, arthritis and assorted auto immune issues. Plasma exchange which involves 5 days in hospital is the only treatment if not caught early enough. IvIG therapy can be useful at the start but it can be very aggressive if not dealt with quickly. But every ataxia case is unique, hence the difficulties around treatment and lack of knowledge by neurologists.