What a shame! Many people with disabilities can’t maneuver. On the other hand we’ve become so afraid of hurting the disabled and getting sued! Or, maybe the bus drivers are afraid of getting hurt? What has this world come to? We can’t even help others who really need now?
This happens all to often.
there’s a lot of clods in this world but thankfully there are also a lot of caring people that make up for them!!!
There are more caring people then such people
The able must know how lucky they are n the disabled r also people. Society must bwith trained.to be more inclusI’ve. It is the job of all society, government, non profit organisation, profit organisation etc. Rgds Jacob
Hi Jacob how are you as I live close to Barrie where this happened this is bad anyway thanks for the note. It’s getting harder and harder to find handicap accessible life . All aspects from the curb on the street to doorways into buildings. Thanks for the note Perry Weatherup
That’s right Jacob/Perry. It should also be noted that organizations that run these buses government/private are sometimes a first steps for disabled peoples independence, in terms of getting to and from otherwise inaccessible places. Access to reliable transportation, policies should be put in place to protect drivers and passengers alike. However, I feel drivers of these specialized means of transportation should have proper training to load and unload passengers with disabilities. If drivers of these buses/vans feel their safety is being compromised, maybe they should look to other work. It should not be up to the individual drivers to make the decisions whether they help or not, they took these positions for a specific purpose, to help those that cannot help themselves. Maybe they could learn something from drivers in TO. There are more caring folks in the world thankfully, and I don’t mean to go on about this one, however it strikes a nerve with me. I thought the battle for accessibility was going in a more positive direction!
I have found I can go most anywhere with my scooter and I don’t have to rely on others to push a chair around. Problem is most places do not have automatic doors, including my neurologist. I have to rely on someone again just to open the door. I ask how can we be fully independent when society will not let us. I know there will come a day when I have to rely on other people but I fight very hard now to be independent.
i feel my legs are heavy/ my doctoe said my legs are a little
spastic/ my romberg test is not good and i don’t have a normal
balance / i passed two mri that showed -mild athrophy in the
vermis and my cerebeller loss surface
are those signs of spino cerebeller ataxia ?
Hello yes those are signs of spinal cerebral ataxia. I have it too and my walking is bad. I use walking sticks or a walker. My speech is slow too. For about three months I couldn’t speak at all and it’s come back a bit I talk slow. So it looks like I had a stroke. I’ll usually tell people I had something like a stroke but it’s a little different. I guess it’s not well known. They had problems diagnose me they thought it was MS but it wasn’t Dr Zinman said I could turn my head I didn’t have MS what I have is in my cerebellum.
I go to aqua fit which helps Bye for now.
Even the Dr.'s ask me if I have had a stroke. Ataxia still is not that known about even 5 or 6 years ago. Even 10 years ago people didn’t know what it was. I try and speak real slow so people understand me. I was in the hospital for four days. All OK. I ordered breakfast of blueberry pancakes and got a blueberry muffin. haha So I guess even slow it sounds OK. to me but it comes out different. I would fall with the walking stick and me too, I use my walker inside, but my scooter outside.
It is very hard I speak very bad and eat
Sometimes I am very desespérate and I do not understand why that illness if there is a cure for that or what to do
No signs of stroke on MRI?
I have ataxia and more. I was diagnosed with (MSA) Multiple Systems Atrophy. It has a poor outcome but at least I know. I see a specialist (neurogist) in Boston, MA at Brigham and Women’s Hospital. He is awesome.
Hello Debora…I have sporadic cerebellar ataxia. In what way is the neurologist in Boston awesome?
I agree. the worst part of having ataxia is not having the condition, but trying to function in a world that presents far too many challenges. it is quite ridiculous!
"Life is what happens to you when you are busy making other plans."
Hi Debora, about how long have you had MSA? What are your symptoms at this point?
You are not hopeless! You are probably depressed-are you taking meds for depression? Have you taken therapy for your speech - sometimes it helps. I hope you can get out of the pit you are in so you will feel better about yourself. Been there, done that. Good luck.
We all get depressed but we know there is hope for us ataxians. Biohaven is in human trials. We hope to see something next year. Fingers crossed. My heart goes out to all of you as we all have our demons that need slaying.
Thanks for this jman,
that is really good news! I just checked the Biohaven site. I have SCA6
which is one of the types of ataxia which the drug is aimed at. Let’s
hope the trial is successful… Meanwhile, let’s all try to think
positive and enjoy what we can of life.