Am reading in different Discussion to exercise, though am not understanding this exercise part,, what kind,, I find that the more i do of anything, even cutting veggies and so on for dinner i wll pay for it later that day and then one to 2 days later. I do sit to cut and peel veggies,
does help the legs though the arms will get very tired then it's difficult to to use them,, using a computer brushing my hair, just does not happen. So wonder what kind of exercise and are there place we cn go to for this, as the "Y" would be out question for me... I used to swim laps. Now only four arm strokes and the arms are unless, I gave up using the legs for swimming years ago Stairs used to be good way for be as well though not any more.
thanks for any and all ideas and thanks for being here
I never do a lot of veggies in one go and often use frozen ready diced, especially onion and mixed peppers.
If you can get referred to neuro physiotherapist they will help you with exercises for hands and fingers, such as putting elastic band on table top and putting alll your finger tips [including thumb] inside, then stretch band open.
Lying on bed exercises for core strength very good too.
I use wii fit, passive pedaller and vibration plate. We also go for long walks [using 4-wheeled rollator].
Everyone has different ability though so need to find what works for you.
Always nice to hear from you xoxo
So many of us suffer from fatigue. Yet if we can be active (selectively) our energy increases (to an extent). I can't see my energy levels being normal, so I pace myself, and if it's a bad day, I rest.
On a good day, I do tai chi. One routine takes about 5 mins, warm up cool down added makes around 15 mins.
I have an exercise bike, and a treadmill. Using them in short bursts, I rack up around an hour. Sometimes I go to water therapy, each session is about an hour.
As Patsy said, you need to work out what works for you, but for your health sake, you need to be as active as you can be, in the way that helps you.
Hello Mach 6,
As Patsy an Magrat say, there are many things you can do. Like balance exercises, walking (very important) etc… The National Ataxia Foundation has published a fact sheet about Ataxia. Click on the link above. The fith line, titled “Coordinative Physiotherapy gives you a few examples of exercises” . Check with a neuro-physical therapist if you can find one in your area. If not, go to a stroke rehab center. If they cannot take you there, they might be able to refer you to one.
Take care. Remember, keep moving and just rest when tired… Ataxia is very tiring because it takes so much effort to do anything.
Everyone has such great suggestions!!! I don't have your issues Mach6 but everyone here has great ideas for you. Kudos and best wishes!
This is a link to a neuro rehab clinic in Burlington Ontario where you live. May be you could get assessed there…
Dear Mach 6, Everyone gave really good suggestions. I'll add, for balance, I stand at the legde between my kichen and family room (In case I have to grab on) and stand on one leg for as many seconds as I can, then the orther. The kichen counter works also, as well as the back of a sturdy chair. I keep trying to increase the seconds. Also, I walk along the back of the couch, holding on with one hand and walk heel to toe. If you Google exercises for balance, you'll find many ideas. as well as Googling exercises for ataxia. I lay on the floor and stretch my muscles each day. Just do these things a bit at a time, as this isn't a marathon...,ha! My best to you..., ;o)
I have had sporadic ataxia for 20 years and have lived this long (now using a walker) by exercising almost each day - cardio, weights, machines at the gym plus I squeeze tennis balls 100 times each day for hand strength. My neuro says I have done this well just because I have kept moving. Good luck to you. I know it is not easy
Individual Yoga therapy then a private practice tailored to you. I'd suggest Structural Yoga Therapy.
I have SCA2. I’m a firm believer in exercising. I do a lot of core and shoulder strengthening. (Planks, Russian twists, situps, weights, crawling) I workout with an occupational therapist twice a week. We do a lot of intense balance exercises.(There are parallel bars at therapy for safety.)twice a week I walk on an anti-gravity treadmill for 30 min each time. I also do several hand exercises. for the 1st time in 6 years, I feel my disease is manageable! keep moving!
thanks ALL for all the ideas there Great, an i will start being more creative with exercising ,,, am looking at traditional or what I used to do..... am not diagnosed so any help from a health care clinic/rehab is out of the question for now,,, that being said i see my Dr. GP on Monday and will be bringing lots of question and idea she very understanding and will follow up on any idea I suggest,,
She as frustrated as i am, that I don't a specialist,, so will be asking for one that was suggest from a client here
thanks again Mach6
I am cross posting this from another discussion topic. I came across this when googling Frenkel exercises. It looks interesting?
Frenkel exercises are excellant for ataxia.I recently purchased a book on Amazon called "The Treatment of Tabetic Ataxia By Means Of Systemic Exercise" by Heinrich S. Frenkel. It was printed in 1902 in German, but translated and edited in English. It actually shows the exercises, which, for me is helpful, as I'm very visual..., ;o)
thanks YOU for this site, I have been e-mailing with them now and the Dr. there, says she can help/ direct me on getting a diagnoses,, I cant use the clinic for pyhso , till am diagnose,, , This is a great start though thanks, A Lot
Really happy Icould help you. Best wishes and good luck. Let us know the outcome of your visit.
I'd say any exercise that works on your balance or core (neck to your butt). There is no standard of what works, you have to find what works for you. Any type of exercise is good, just keep moving. You used to swim laps, if you like swimming change what you do in the pool.
How do you all get time to excercise so much ? I find by the time I have got my boys to school got showerd and dressed done some washing its time for my nap and then the boys are back.
I'm retired...from work, not from life...:) I usually do my exercising after my nap in the afternoon. Tai chi can happen any time.