hi to all,thanks to all the replies i have had , its been most helpful.
i have now updated a photo of myself.
I have done some more research re ataxia.
I have another disease called heamochromotosis basically iron overload, it is gentic, the gene is named C282Y, this is treatable by means of draining a pint of blood every 3 to 4 weeks to weaken the iron content in my bloodstream.
My personnel belief that there is a correlation between the iron overload and ataxia, in the medical world i think the jury is still out on this idea. Iron as we know is a heavy metal, and in my view this could well damage the brain, in my case the cerebellum.
I have spoken to my heamotologist about this, and he claims that he has not come across this before.
Bare in mind medicine is not an exact science.
At the moment i am using myself as a guinea by delaying the time of going for a blood release.
so far its been 2 months and i will be going to a have a blood release next week.
My gut feel is that i will feel better and may well be a improvement with the ataxia.
i will keep you informed after the blood letting and to see if my theory works.
In the meantime it could be wise to ask your doctors / consultants to take a ferritin test
a healthy reading should be between 50 - 90 . When i was diagnosed i was on a level of 2640!!
about 3 yrs ago, its down to 170.
Also look up heamochromotosis C282Y on google