This may have been the largest Ataxia Research Conference to date.
Please follow this link - www.ataxia.org.uk/ and click on ‘research’
On the same link - new video by AtaxiaUK
Great stuff
I was speaking about Patient Engagement with Ataxia / Raredisease, to the pharma industry, at a conference in Barcelona at the same time.
it was a bit daunting public speaking to upto 600 pharma Chief Executives from around the Globe.
Daunting, but you did it anyway!
I admire you for the time you put in on everyone’s behalf Alan, thank you 
xB
Thanks for your work, Beryl and Alan!
A blog about this conference in Barcelona
With Patient at the Centre (and in conversation with) pharma
http://engagerx.org/wish-you-were-there-eyeforpharma-barcelona-2015/
This is fantastic! Thanks for sharing..., ;o)
Alan, I loved the graffiti wall
Thinking down the chain, pharmacists are manufacturers - doctors are suppliers - patients are customers.
Finally, it seems agreed that customers needs come first, above profitability.
Good info Beryl