How do I begin, I have some form of SCA that doctors have been unable to diagnose so I just live in solitude with my walker. To top it all off I played the stock market and lost most of my savings and retirement my wife kicked me out if our house and I moved back to my mothers. Now I have no home, no wife, no children, no money, no life left, but I find it morally and ethically wrong to kill myself but what do you do when every part of my life is gone and nobody but my mother cares if I live or die HELP!!!
First of all, WE CARE! How do you know that tomorrow isnāt the day that the cure is found? Suicide is the most dumb thing that can be contemplated. Iām not making light of the thought because of the problems associated with Ataxia but you WOULD be missed even though you donāt think so now. Even though you might not see it here, youāre not the only one who has to face difficult times. Iām sorry to speak so harsh here but Iām only trying to set you straight.
Have you looked into trying to find an Ataxia support group? https://ataxia.org/ In my estimation, playing the stock market with ātough moneyā is a form of gambling. Have you looked into support with a Gamblerās Anonymous support group? Friends of mine did and itās very helpful.
BTW, how old are you?
43 yrs old and I just need a regular routine to get into and Iāll be fine and I live in a very rural area and their is no Ataxia support group around here
You may not be physically able to attend a support group but you may be able to correspond with the leader. That person might also have some good ideas for you. You can also post here or read on a regular basis.
FYI, I was 21 now 73. when I developed Ataxia. I was also looking at a professional sports career.
My father had this and his father now me and my sister and no one in our family has lived to 60. I have seen so much death from this damn disease
Very important! Ataxia is an individual illness. So someone elseās experience is not your experience.
your right I have noticed our form of Ataxia or whatever it is, is way worse than I ever seen in my father and his brothers who died from it
Suggestion. Please stop being negative. It can only lead to bad thinking.
The National Ataxia Foundation provides a variety of ways to connect with others affected by Ataxia.
Find a Local Support Group on Our Interactive Map
[Join our Facebook Group](https://www.facebook.com/groups/
You would probably benefit from more interaction with others who share the same challenges. It really does help to talk. As Chas recommended, log onto www.ataxia.org and search for Support Groups, even if there isnāt one in your immediate area, you can contact the nearest. And, the NAF Facebook group is very active
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@majdr, Iām so sorry that youāre going through such a rough patch. Iām guessing that this is a fairly new diagnosis. Youāve had a lot of changes in your life, and itās not uncommon to grieve the loss of your life prior to developing this. In addition, youāve had major financial and family changes.
Please seek out help! There are crisis numbers listed here. You can also seek out a therapist locally. Thereās no shame in asking for help.
Sharon
chas 521 is correct, WE CARE Suicide is not the answer. You donāt have to leave you house to get support. Even just on here you can vent. This a great place to do that. Nobody truly understands un less they have it.
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There are already good answers here to hjsgqelp you ā¦
That you reached out for help is a good sign. My ataxia is clearly in my family, so I know wht
I know it will get better in time. just all my years of solitude is finally catching up to me and I feel like I have no one left to talk to. I chose to stay to myself through the years and now I am suffering because of it!
Itās surprising how much better life can be if you only reach out and have interaction with others. You donāt even have to leave the house, once youāre on-line you have the world at your fingertips And with people living in different time zones, thereās always somebody somewhere to have contact with. If youāre on Facebook, there are numerous different Ataxia Support Groups, and most are very active. Itās definitely worth taking a look
The only problem with Facebook is I am in such a small area that everyone knows my business before I even do anything and everyone is too fast to judge without hearing the whole story. And fyi to ModSupport I have been disabled for nearly 5 yrs so Iām not new to this.
Thanks for the reply @majdr. I wasnāt sure if you were new to ataxia or not. Reaching out here and talking to people here is a good start to being more connected. Iām glad that you reached out to us.
Sharon
I only use Facebook to post on āClosed ataxia support groupsāā¦I donāt use it as a social media, no-one can read my posts other than the specific groups Iām a member of. I donāt know if youāre actually aware that anybody, anywhere can read your posts here if they just click onto livingwithataxia.org
one thing I noticed about us Ataxians is we like a routine to follow and when it is altered or broken we lose it
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I tend to agree with you. With so much concentration required for multitasking we get exhausted, routine and familiarity are definitely a comfort and relieve stress. It can shake confidence being in an unfamiliar place, even meeting new people. Thereās so much more to ataxia than it being perceived simply a ābalance problemā.
Weāre about to move house shortly, and I know this is going to affect me greatly. Apart from the general trauma and upheaval, Iāll have to get to grip with totally new 24/7 surroundings. Now, in my home, Iām well familiar with how many steps to take before reaching out for wall support, the stairs are dog-leg shaped and for the moment manageable, but what if I have to contend with a normal run of stairs 
Weāre going to have to rent, and bungalows (single storey) are very thin on the ground 
Thereās a high probability that weāll have to accept a house, or itāll be a Hotel 
My hopes and dreams are when my wife sells my house I am going to use my share of the money and buy a portable storage building, insulate it and convert it into a small handicapped apartment then I donāt have to answer to nobody and any one can come visit me. I can make a nice handicapped small apartment for reasonably cheap.
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