Yes, there are at least two groups I know of. We have a BC Ataxia Group, And I believe there is one in the Toronto/ Quebec area. There may be more. One of these days I will research this and let you know what I find.
I am aware of the BC group, they however, are on the other side of the country from where I live. And as far as an Ontario or Quebec group I have found none.
I have contacted the BC group and am awaiting a reply.
I think that I will simply start my own. I've been sitting on it for a while now. In fact, I've already completed the charity registration forms and simply need to establish my board of directors and submit the docs and pay the fee's.
Tom have received this message from my friend, Patty, in Canada [sorry our names are confusing!!]
Patsy, I have contacted both our BC Ataxia Group and and a separate group we have here we call AHA (Ataxians helping Ataxians) We support each other, compare symptoms and what works for them, etc. I don't have an email for Tom, but have asked them to check and see if he has tried to contact anyone. As soon as I have ask email for Tom, I will pass that one. We have one or two other members in the Ontario Area.
Please forward your friends names to
Lisa Leadbeater Hethterington
In facebook. I suggested she bring her husband to a support group meeting in Ontario, if there is any. If not, maybe they can at least get together.
Hi… I just found this group last night. Am also a Canadian…Edmonton area. I found Ataxia Canada, lacaf.org, which has some information. It is from the Quebec area, and they didn’t know of any support groups out here.
If you’re on Facebook, do a search for ataxia support groups. I’m a member of a few, and I think you might find other people in Canada. If you’re looking for information about ataxia in general, www.ataxia.org is a good place for reliable advice and facts