Has anyone tried something new to try and help with everything? I have been plant based completely for 7 years and gluten free for 6 years I heard that gluten can bring on early symptoms has anyone else heard that? Besides that it has helped me with my stomach issues they are gone.
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Have you ever been tested for a Gluten sensitivity? I’ve heard, but I don’t really know, that if you don’t have a sensitivity you shouldn’t be on a gluten free diet. While there is a Gluten Ataxia, you should be tested! 
A healthy diet is a good thing for anyone.
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I haven’t but I was sick almost everyday and the last time it was after pizza and breadsticks trust me it isn’t bad for your body to be off of it. It’s the fact if I didn’t feel 100% better I would eat it I miss a good pizza crust. But since I’ve not eaten it in so long I can’t be tested my doctor says if you can do it keep it up. I was just curious if anyone else has tried diet to help but I haven’t noticed a difference in my body I did at first but less foggy brain at least.
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Thanks for the good information. Keep up the good work. FYI, there is gluten free pizza. My friend was gluten sensitive. Lost him to COVID.
I know there is but it’s not great nothing beats a good old fashioned gluten filled crust lol
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Yeah, I tried it once with my friends. Didn’t care for it 
The crust is cauliflower.
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Hello Lindy,
Welcome to our group–I think you’ll like it here. 
There are a lot of people with great ideas so you’re in great company!
I don’t know what type of ataxia you have, but after I got my ataxia, I missed jogging and walking on my treadmill. I honestly didn’t think I could still do it, so I stopped (I thought I’d fly off the treadmill–lol!) but after reading an inspirational story about a runner who had ataxia, she found out she could still run after trying it, even though walking was still a bit problematic. So I tried it too and was elated to realize that I can still jog fast–when I slow down I get a little more spastic, so I hold on with one hand then. (Love jogging to “Permission to dance” by BTS-very inspiring words! After checking with my PT and doing research, I found out that the brain uses different pathways for jogging vs. walking–go figure!
Going gluten free since August has been life changing for me for sure, ever since I was diagnosed as borderline celiac. I feel like it’s given me my life back and restored who I was, before the ataxia. My brain fog is completely gone now, which has helped my work in medical records tremendously and I’m typing fast again. To others out there, whether you have a diagnosed ataxia or not, think about getting a celiac panel done with your next blood draw because it’s easy to do and could be life changing for you too. Lindy, your question is a great one for your neurologist too, who can fine-tune a special program for you, whether it’s exercise, PT, OT or Speech, but this is certainly a great place to pick up tips and tricks from people who live with ataxia every single day.
One of my favorite places for learning new ataxia hacks is Youtube. Not only can you see webinars from the National Ataxia foundation (here’s one on tips: Living and Coping with Ataxia - YouTube ) but there are all sorts of ataxia videos with suggestions from others as well, if you do a search. Best wishes and let us know how we can help even more. We’re here for you!
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Hi 
I haven’t been diagnosed yet so not sure but I’m waiting to see doctor I’m 90% sure I have it 10% is still hope lol but I have symptoms and it’s hereditary in my family great grandpa, grandma, mom and 2 sisters have it. I was never celiac tested but I was gut sick daily until I quit now it’s every now and then it has helped with a lot of areas but not too many unfortunately as ataxia is concerned but my gut sure thanks me lol
Your Neurologist gives good advice…if you’ve already found going Gluten Free has improved symptoms …why put yourself unnecessarily through a gluten challenge.
If several family members have been diagnosed with the same type of ataxia, testing should be straightforward.
But…there’s always the chance that another type has appeared…for example gluten ataxia. Or, you may simply be celiac or gluten sensitive.
You can view videos, giving reliable information about ataxia…and Webinairs hosted by Specialist Neurologists on this link
https://www.youtube.com/results?search_query=national+ataxia+foundation