Great help but if you read to the end of the article it is only available to those under the age of 26. With many types of ataxia not becoming apparent until later in life, this provision would not apply. Too bad, but a step in the right direction.
I was diagnosed with Ataxia when I was 52. However, looking back now, I think I've had Ataxia all my life. I had encephalitis when I was 5 and I think that's where I got the Ataxia from. I was always clumsy as a child, could never play sports as well as other kids, can't ride a bike because I can't balance it, etc. If this passes, is there a way to prove I had Ataxia as a child?
The ABLE Act passed the House then the Senate and President Obama must sign. The autism community has been fighting for this for the past 8 years. The purpose of the Bill is to allow parents and families of people with disabilities to save for their loved one’s futures tax free without losing their government benefits. My understanding is that this also applies to adults. Any new information that anyone finds out is greatly appreciated, and I will share anything I learn with you.
On December 22, Obama signed the ABLE act into law. Here is a link to explain in more detail, what you need to know about the law and how it will affect you. This is a huge gain for those living with disabilities, but there is still much more that needs to be done so that ALL are covered properly.