Hi, I was diagnosed with gluten ataxia in April of this year after many years of not knowing what could possibly be wrong with me. I've just turned 18, and I'm in nursing school.
I've come here to find others like me, who can maybe help me with the stress and emotional troubles having ataxia has given me. A couple days ago I was crying a lot because I realized I can't do so much that I want to do. When I was younger, I was in my town's volunteer ambulance corps, and since then I've wanted to be a volunteer EMT until I graduate nursing school. I now realize that being an EMT requires a lot of physical strength, which I don't have. Maybe one day I'll be able to lift a heavy gurney? My dream is also to be a doctor; however, I've decided to take an easier route for now, to see if I can handle nursing.
One of the bigger issues for me is "brain fog". Sometimes trying to write papers (and there's a whole lot of those to write in college), I can't focus at all. I stare at the blank page for hours and can't think of anything. I also feel like I'm in a dream, and I can't tell what's real and what is a dream. This is a big issue because college is my priority right now.
On a good week, I'll have very few symptoms. I'll have good balance, I can think, good sight, no twitching or muscle cramping, and I'll have energy. Things that can cause a flare up are stress, illness, gluten (of course), and lack of sleep. School causes stress, which causes me to do bad, which causes more stres... it's a never ending circle of stress.
How do you guys prevent those bad days? I'm having a bad day today, I had a virus earlier this week and I think that's what made everything worse.
I know that eating wholesome foods can help, but I don't have time or money to buy fresh fruits and veggies all the time :-( what do you guys eat?
Thank you so much,