I put something similar on Ataxians in Canada.
Although diagnosed as Idiopathic SCA I’ve been told I have links with the recently discovered gene SYNE-1. This is said to be French Canadian in origin.
My grandmother corresponded with ‘possible relatives’ in Canada and Pennsylvania.
Her maiden name was Hankin, she married and became Johnson. She lived in the North East of England.
Does this mean anything to anybody? 
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