Our Burden's and Woe's

General
1

Burden’s and Woe’s

I am ill and I am burdened with so many woes

Unable to think straight not knowing what goes.

So many I've talked with but what can they solve

It only makes life harder just trying to resolve.

I know many wonder why I keep things in

But only I know my intentions. I feel it is no sin.

Why burden them with explaining the grief I go through

It will only cause pain knowing there is nothing they can do.

The support from all loved ones gives me great pride

Just knowing they are here for me keeps me alive.

I try real hard to do for myself,

But at times I am thankful they are here to help.

Alone all day long I am lonesome and blue,

Keeping it to myself on what I should do.

Limited doing things while losing my steps.

Not getting done in my home I once kept

Please know, I ask for no pity for how I now feel.

It is what it is and I must learn how to deal.

I could wish on a star to get my life back

But then maybe, just maybe

Life might be worse than where I am at?

Vickie Welsh Diagnosed 4 yrs. ago with Cerebellum Ataxia

2

What a beautiful poem. You not only described what you are going through, you also described me. This insidious disease has a mind of its own and no one really knows how we feel on the inside. Thank you for putting into words how fellow ataxia patients feel. Have a blessed day, from the USA!

3

Beautiful poem, Vickie. Captures eloquently what we all feel (alone in our heads). Oh, how we long for days past, but then like you say maybe we might be worse off. Take care,

Vasant

4

I love your poem, so much as I feel,

5

Good poem Vicki.It sums up how I feel.A Voice for many of us but as you say it could be worse.

6

Fight Ataxia
Ataxia sucks, it surely does
Life can't be what it once was
When crabbies, frustration, and pity surround you
It rubs off on everyone around you
Before you know it, you're all alone
In your own little world…your ataxia zone
It really does not have to go down that road
But your pride and your stubbornness make that big load
You're always embarrassed for someone to see you
And think it would change if they could just be you
The treatment ain't there, NO drugs really work
So you'd rather sit there and look like a jerk
It's all in the attitude, no doubt about it
So don't let your foolish pride step out and cloud it
Your friends and your neighbors and family
Can all only see what you want them to see
So if you really want to improve your life
It's all on you, not your husband or wife
Your kids or your parents or siblings can't change you
No doctor on earth can rearrange you
Life isn't so bad if you give it a chance
But you must be willing to sing and dance
It's easy to blame everything else this is true
But if life is hell, point the finger at you

7

Beautiful poem, Vickie!
Jonas, you have a different approach, but it says it all too.
We are all different and express our pain in different ways.

Both very touching poems. Thank you for sharing them.

8

YEEEEESSSS! The way I constantly try to think every minute of every hour of every day!

Jonas Cepkauskas said:

Fight Ataxia
Ataxia sucks, it surely does
Life can't be what it once was
When crabbies, frustration, and pity surround you
It rubs off on everyone around you
Before you know it, you're all alone
In your own little world…your ataxia zone
It really does not have to go down that road
But your pride and your stubbornness make that big load
You're always embarrassed for someone to see you
And think it would change if they could just be you
The treatment ain't there, NO drugs really work
So you'd rather sit there and look like a jerk
It's all in the attitude, no doubt about it
So don't let your foolish pride step out and cloud it
Your friends and your neighbors and family
Can all only see what you want them to see
So if you really want to improve your life
It's all on you, not your husband or wife
Your kids or your parents or siblings can't change you
No doctor on earth can rearrange you
Life isn't so bad if you give it a chance
But you must be willing to sing and dance
It's easy to blame everything else this is true
But if life is hell, point the finger at you

9

Great poem, and it is true. Life can be worse than where you're at now. There are times where I want to wish on a star and it all goes away. But the reality is that this disease is a battle we all need to win. So let's pick up our swords and fight this battle together with positivity!

10

Yeah, it's definitely possible to be healthy and miserable. Just like it's possible to be sick and happy.

11

Brilliant poem. I always wondered why some people are just able to write poetry so seemingly easily, I could never do that. I also wondered why people with ataxia generally have such a wonderful, positive attitude - or come across that they do. It's wonderful really, I never would have thought that this many people with such terrible afflictions could be so caring, nice and friendly but they mostly are. And you most certainly seem that way too.

Thank you so much for that, it made me feel so much better.

12

We all must remain positive, hopeful for a cure. Grateful for what we can do and not negative for what we all can not do.We can all help each other by communicating like we do, sharing how we all feel. wow have you a talent for words which makes you very special. REG VARDY's motivational speech puts things a bit in perspective( on the net) Peter England.

13

A realistic poem. Thanks for sharing. It made me cry and I realized that I am not alone in this struggle.

14

" Limited doing things while losing my steps.

Not getting done in my home I once kept."

A lovely, poignant poem..

15

Very moving poem. We are holding hands together to keep stronger.
Thank you Vickie.

16

Vickie

I do understand your emotions.I feel the same way only not as wise as you.I vented to husband and daughter and got more than i bargained for.I am going to see the shrink this pm.

It is naturral to feel this way but probably better to as you say have relatives there forr support.

I have found out the harrd way.Not many people understand Ataxia and it makes you feeel so alone.Thank goodneess for this site.

17

You finish your poem on a very positive way Vickie.Wish I could achieve that.Trying and trying to get there but keep putting on the rose coloured spectaclees.

18

Wow Vickie,
How beautiful,
Thanks for sharing.