This disease sucks. Like wth. It’s so embarrassing to bump into people and it’s rare so not many people understand what’s happening to you. But I’m really young so I’m hopeful there might be a cure or something like that before I die.


:slightly_smiling_face:Hi, and welcome.
There are few younger people active in this group, and I suspect you’d find more of a rapport elsewhere :slightly_smiling_face: I wonder if you’d be interested in another support group :thinking: it’s actually part of the National Ataxia Foundation (NAF) and specifically for 16-30s. You can find links to two groups specifically for younger ataxians (ataxia.org - NAF and ataxia.org.uk). If this interests you, google ataxia.org 16-30 support group, you’ll see links to both groups :slightly_smiling_face: