Friedrich's Ataxia in North Carolina

I am very interested in discovering others with FA in North Carolina. Currently I live in a group home, where I am the only one with a physical disability. Due to this, the program I am involved with [RHA], does not have a set program situated to my needs. I’m sure this is the case for any Rare Disease. But I believe if we come together and show there are others with Ataxia, a change has to come.