Has anyone had to go to the SSDI evaluation dr? What do they do and what is it like. Very nervous.
Yes, I had to be evaluated by the SSDI shrink to be sure I wasn’t a faker. My advice is to totally be yourself and be honest about your limitations. I took my sister for support. It was the finL step before being approved. Good luck!
I had to go to a dr. I know not everyone is diagnosed the same but for Friederichs ataxia the neurologist took about 5 minutes, 2 minutes to approve it and 3 showing a younger dr the symptoms. What was strange is at the time I we3nt there I thought I was doing pretty good but apparently to a trained eye they could tell. Since FA is on SSAs list of conditions that are approved that was about it. Ive never had to go back to a dr for their approval but in the past two years they keep asking me to send in all my financials and say theres a chance I will need to get re-approved but I think the reason they do that is I dare to have some sort of earnings. Now there's a DNA test that wasnt there when I was diagnosed and I always offer to take that test if they will pay for it because you need that test to do clinical trials but they havent taken me up on that./
I have not been to ssdi yet.
I can how ever talk about being nervous.
I am on workers comp and have worried about my QME doctors appointment (aapproves everything) so for a year I have worried over this appointment. I have had many doctor’s appointments.
The appointment went very well he was the best doctor I have seen since this whole thing started. I couldn’t get doctor’s to listen, he spent over an hour with me evaluating me and even wrote down things regarding my back, that none of the other doctors did.
Just goes to show that being nervous and stressed was not needed. Be yourself, tell the truth, but be clear, I brought notes so I felt like I covered everything. Good luck
Had an evaluation just to make sure I was not a fake… No big deal… Just be honest. Good Luck!! 
I thought it was a joke. My ss Dr never heard of episodic ataxia 2, and unless im having an episode I look and act normal. The Dr. wouldnt even let my brother in to help explain what I have. It took a note from my neurologist before they would eventually approve me . Good luck and just be honest with him or her.
I think any time you go to se an SSI doctor for any reason you should not take any of your medicines if it is possible,You want the doctors to see you when you are at your worst,You take you meds and give them a reason to deny you.Also if you are doing bad healthwise dont let them give you a new appointment, make them take the time to come to your home to examine you. Dont make it easy to deny benefits. Jerry
David Moore said:
I thought it was a joke. My ss Dr never heard of episodic ataxia 2, and unless im having an episode I look and act normal. The Dr. wouldnt even let my brother in to help explain what I have. It took a note from my neurologist before they would eventually approve me . Good luck and just be honest with him or her.